What I’m going to try to champion

Living in Richmond is pretty good, it’s a small town, everyone knows me by sight (probably something like “that nice disabled guy”), but the bike paths are non-existent for me.  I can’t ride a conventional bicycle.

My ride is about 3′ wide, and about 2′ off the ground.  At the speeds that I ride at, I’m pretty much completely invisible.   The roads that I’d prefer to ride on, because they’re outside town, don’t have many intersections, and are long, but have speed limits of 80 km/h.

I’m fast, but nowhere near that.  I’ve approached the city councillor for the area, asked him for his help, and I’m not sure when, but I’ll be getting going at getting it done!

 

Come walk with me!

This year’s walk is looking to be more than awesome, it’ll be…awesometastic?  I don’t know the right term, but whatever it’ll be, it’ll be that.   The walk is 39 days away, and holy cow, it’s going to be awesome!   If you’ve been to one before, you know how from how awesome it was that it’s going to be better!  Please click-to-register, collect some pledges, and be awesome!

It’s perspective, and visibility

This past weekend I was in Toronto, at a charity awareness hockey game, organized by StopConcussions.com.  There were closer to 50 people playing, and the message was clear.  The occurrence of a brain injury can’t be completely prevented, other than living in a box, and doing nothing.

Before the game, Kerry talked about what the day represents, and introduced me to the group.   I looked at the group, there were at least 3 retired NHL players, a para-olympian, a woman who I think is an Olympian of some sport, but it was me who was speaking.   There were several people in the group who approached me after, saying that they’d suffered an injury, and weren’t the same.  But, the fact that they’d suffered the injury was completely invisible.  I heard that Keith (Primeau) felt the effects of his multiple-concussions for upwards of something like 7 years after retiring.  However, he’s the ultimate example of its invisibility.  He walks unaffected, and he speaks with no issue.

The mission of Never Stop is “To support and promote public awareness and education on brain injuries” and this past weekend I helped do that.  While the participants were familiar with the injury, my addressing them showed another aspect of it, which is the invisibility element.  I used to hate how I was, because of all that I’d lost, but with the evolution of Never Stop, it’s given back to me what I lost.

The name, Never Stop, is more than just a name, it’s a feeling that people should embrace.  That no matter what happens to you, unless you’re dead, you should Never Stop.  I lost the coolest job, I lost the ability to do triathlons, but I decided to Never Stop.

I ride a tricycle, and planning to get an Alinker, to enable me to walk at a pace that would make me race-capable.  While the name of it is Never Stop, it also represents the mindset that it promotes.

 

 

What would you like to see here?

The reason why I’d started to post newspaper stories last year was that I simply didn’t know what to write about.  Then, I realized that that’s basically pointless, simply copying what’s out there.   I began to write about me, my injury, and what it means.  However, that’s what I think.  I’ve got goals, I’ve got thoughts, and I think that I know what would be of interest to everyone.   I live with the brain injury, I know what my limitations are, and I know what good has come of it.   What I’m trying to have my online presence be is a two-way interactive teaching element, about Acquired Brain Injuries, so that when someone hears it they say something like “I know what that is”, as opposed to the usual now, which is “huh?”.

In a little while the YouTube channel will be born, where you’ll be able to see, as opposed to reading about, the effects of the injury.

However, until it’s live, I’m going to try to make this into something like that.  You can simply post a question here, or send me a note directly,  but I’d like to hear from you!

Its all about perspective

This morning, I had a realization.  Yes, I can’t walk as I used to, I have challenges to remember what I’d had for breakfast yesterday, I can’t ride a conventional bicycle, but let’s look at stuff.   I have a tricycle, that’s helps me to go wicked-fast.  The support-group ROSSS has a bi-weekly van that takes disadvantaged people to the grocery store.  They arrived at about 9:30 to pick me up.  One of the staff helped me into the van, the second took my walker to the back of it, and the third drove.   At the store, I’d wanted to get something, but couldn’t find it.  Assistant #1, who helped me into the van, asked me what it was that I’d wanted.  I described it, she said that she knew where it was, and went to get it for me.  When done, they took the cart from me, and loaded everything in the van.  When they dropped me off at the house, all three of them helped to carry the stuff into the hallway.   Everything that they do on the ride is paid for by the community association, so all that I needed to do is say thank you.

Yes, it sucks what happened, but the lemonade I’m making from the lemons is mighty sweet, and then some.